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Events

Events

Learn from the experience and insights of families, clinicians and other caregivers in live-streamed events.

Upcoming Events

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Upcoming: A Lifetime of Moments: Building Memories and Living your Child's Legacy Together
EVENT
September 22, 2025 8:00 pm

Upcoming: A Lifetime of Moments: Building Memories and Living your Child's Legacy Together

Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical…
Event Details Register
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Upcoming: You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness
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October 9, 2025 8:00 pm

Upcoming: You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness

Children have unique medical, emotional, and developmental needs during disasters, and preparing to meet those needs is essential for effective…
Event Details Register
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Upcoming: Children Have Spiritual Lives, Too. Exploring the Way Children Connect in Their World.
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November 10, 2025 8:00 pm

Upcoming: Children Have Spiritual Lives, Too. Exploring the Way Children Connect in Their World.

Join CPN and chaplain and researcher Amanda Borchik, MDiv, BCC to learn about the ways children express their unique spirituality…
Event Details Register

Recent Events

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Book Talk with Dr. Bob Macauley - Because I Knew You
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Book Talk with Dr. Bob Macauley - Because I Knew You

This In the Room was a conversation with our friend and palliative care pediatrician, Dr. Bob Macauley, whose new memoir,…
May 6, 2025 8:00 pm See Event Page
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Parent Perspectives: Insights into Medical Decision-Making
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Parent Perspectives: Insights into Medical Decision-Making

Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for…
June 25, 2025 12:00 pm See Event Page
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Hear from the Siblings: Sharing Their Journey with Medical Complexity
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Hear from the Siblings: Sharing Their Journey with Medical Complexity

Hear from a panel of siblings during this In the Room event to gain insights into the fears and worries…
April 23, 2025 8:00 pm See Event Page
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Building a Path to Support: Navigating the Stages of Financial Planning
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Building a Path to Support: Navigating the Stages of Financial Planning

Financial planning often takes a back seat to the day-to-day caregiver responsibilities. This session will explore ways to develop a…
May 15, 2025 8:00 pm See Event Page
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Supporting Your Family's Wishes: The Value of Advance Directives and Preparing for Complex Medical Decisions
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Supporting Your Family's Wishes: The Value of Advance Directives and Preparing for Complex Medical Decisions

This event explored how completing healthcare advance directives for/with your child can support your family's goals and wishes. Fiona Sampey…
March 24, 2025 8:00 pm See Event Page
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Being My Child's Protector, Advocate, and Decision-Maker in the NICU
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Being My Child's Protector, Advocate, and Decision-Maker in the NICU

Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening…
February 27, 2025 8:00 pm See Event Page
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Supporting and Celebrating the Siblings
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Supporting and Celebrating the Siblings

From the time that their sibling is diagnosed with a serious illness, the other children will need support. As the family dynamic…
January 23, 2025 8:00 pm See Event Page
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This Shared Journey: Get to Know the Network
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This Shared Journey: Get to Know the Network

This event featured the faces BEHIND Courageous Parents Network, as well as some of the parents and providers IN the…
September 19, 2024 8:00 pm See Event Page
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Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI
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Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

Neurological diseases are often complex, and life, including decision-making, can be hard to navigate in the face of uncertainty about…
October 24, 2024 8:00 pm See Event Page
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