• Spirituality and Religion
  • Working with the Medical Team/ Goals of Care
  • The Hospital
  • The Beginning
  • Coping with the Diagnosis: Grief, Anxiety, Worry
  • Finding Support
  • When it’s a Long, Indefinite Timeline
  • Control

A New Diagnosis
  • Self Care
  • Making Memories
  • The Marriage
  • Other Children / Siblings

Caring for the Self and Family
  • Medical Interventions: Tubes, Trach, Surgery etc
  • Decision Making and Palliative Care
  • Fear of Regrets

Decision Making
  • End of Life: Questions and Arrangements
  • Transitioning to End of Life: Home, Hospital, Hospice
  • Imagining the Future
  • Talking to Your Child about Their Wishes
  • When the Time Comes
  • Anticipatory Bereavement

Anticipating End of Life
  • My Child’s Legacy
  • Identity as a Parent
  • Transformation and Meaning-Making
  • Bereavement

Bereavement and Legacy
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The #1 predictor of child well-being is parent well-being. We support and empower parents caring for children with serious pediatric illness.

“The advice is invaluable and presented in a sensitive and empowering way.” — Dr. Frederick Lovejoy, Associate Physician-in-Chief. Boston Children’s Hospital  

Begin here, with some of our parent videos.

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