5/4/2018 Featured Post Birthdays and BaselinesToday marks what would be Cameron’s 19th birthday. She died 17 years ago, 5 days…
Preparing My Other ChildrenWhen my third child, Talia, was diagnosed at 11-months-old with Tay Sachs, an always fatal…
A Sister's Devotion Radiates Through the Story She TellsMy video chat with Barry’s sister, Lexi, is the most profound a conversation I have…
A Guide to Understanding Your Child's Nutritional Needs Throughout Illness and at End of LifeFeeding our children is a cornerstone of parenting and when feeding is aided by medical…
Anticipatory Grief: The time I had to prepare for her death provided an invaluable cushion to catch my fall .This blog was originally written for CPN but appeared first on Option B. My family…
Giving Language to An Unarticulated NeedIf you had asked me how I felt when my 6-month old daughter was diagnosed…
Spinal Fusion For Your Child?Making decisions about medical interventions and surgeries either with or on behalf of your child…
2 Live Facebook Events: What is this feeling? Understanding Anticipatory Grief.Anticipatory Grief is a big issue for families whose children are living with a life-threatening…
FOLLOW THE CHILD – A Mom's ReviewFollow the Child: Planning and Having the Best End-of-Life Care for Your Child (the new book…
How Palliative Care Helps Us Balance Action and AcceptanceWhen my son was just over one month old, my husband and I went on…
