10/3/2019 Featured Post Making Informed Decisions about Our Daughter's End of Life Throughout our daughter’s short six and half years with us, my husband and I had…
It’s What They Didn’t Do that Mattered - Blogger in ResidenceGifts for no reason, indulgent sweet treats, endless patience for games, relaxed bedtime rules, and…
A Letter to Medical ResidentsJuly is when newly minted doctors begin their residency journey at academic teaching hospitals. Now…
How I Ride the Rogue Wave - Blogger in ResidenceDo you remember that time you were swimming at the beach, and you got clobbered…
Does/Did your child receive palliative care services AT HOME? Help the field grow and improve.Pediatric palliative care focuses on quality of life for the child and the entire family.…
Family Planning in the aftermath of a fatal diagnosis: CPN offers virtual genetic and grief CounselingShould we have another child? Family planning in the aftermath of a fatal diagnosis Supportive…
Beyond the Box on his Driver’s LicenseThe phone rang at 3am. “Who in the world could that be?” I wondered as…
My Love Will Follow You There - A Book for End of LifeCPN does not typically promote products for sale by families. But Carla and her husband…
Reflections on Adult ParentingFirst published on The Dravet Syndrome Foundation site, June 21, 2019. Barb and John were…
By Parents For Parents - Why We Do This & What We LoveFrom the beginning, Courageous Parents Network has been BY Parents, FOR Parents caring for seriously…
