8/27/2018 Featured Post One nurse asked us, "Does your Rabbi think that she'll recover?"Courageous Parents Network interviewed a couple about how their faith affected end of life decisions…
Section on Hospice and Palliative Medicine - August 2018SOHPM_August_2018 IN THIS ISSUE From the Chair: 1-3 Culture & the Universal Challenge of Coping…
Considering the Sibling Experience: DISORDER Film FestivalCourageous Parents Network is proud to be a contributor to the DISORDER film festival as…
A Terminal Diagnosis and Risk AversionWe found out the devastating news on July 17, 2013. A day we won't ever…
The Cure We Don't WantI spend a lot of time raising awareness for Menkes Disease and other Rare Diseases,…
Introducing GUIDED PATHWAYS A self-guided, topic-specific way to navigate CPNAs a member of Courageous Parents Network, you have access to a robust collection of…
A Blessing and a BurdenThe author, Barb, is a founding parent advisor to Courageous Parents Network. This post was…
Should we have another child? CPN is offering a Virtual Support Group SeriesShould we have another child? Family planning in the aftermath of a fatal diagnosis Supportive…
Considering Respite and Long-Term Care for Children with Medical ComplexityParents demonstrate love in many ways, including ways that I am sure they would not…
We Couldn't Save Our Girl But We Could Save Our MarriageI can tell you what I was wearing the day we were told our daughter…
