3/13/2019 Featured Post The Only Certainty was More UncertaintyAs the mother of a son with a serious illness, the unknown was a scary…
Rare Disease Day: Treatment--Even Cure--Is Necessary, but Not SufficientBy Blyth, Jennifer, Kerri We are three moms whose children died from relatively rare pediatric…
A letter from a father, to CPN, about pediatric providers on the occasion of the Courageous Provider AwardDear Blyth and Courageous Parents Network, I think I understand why "courageous" has been used…
We Want to See Your FaceHello to the Parents in Our Network! Courageous Parents Network is a destination created by…
Two Years Later: We Miss You We just miss you, Coop. There isn’t really another explanation for the heaviness that continues…
My Sam: A Mother's Eulogy to Her SonCourageous Parents Network is honored to share here, with Brenda's permission, her eulogy to Sam…
This Narrow Space: Book Review (loved it!) Years after my young daughter’s death from a rare genetic disease, when I was developing…
My brother can help me get through this.https://youtu.be/n9NQy80RPJM December 22 marks the 18th anniversary of my nephew Hayden’s death, peacefully at home,…
Announcing the Ilene Beal Courageous Provider AwardDear Network, This is a time of year that is traditionally devoted to family, to…
