Post tag: Hope

Courageous Parents Network Blog

There are moments when time collapses on itself. Perhaps that is what trauma does –it…

It’s a normal weekday morning and I’m in my white Toyota Sienna minivan at a…

Before Lucas was born, before he was diagnosed with two rare diseases, and before he…

Katie Krawzak, fellow Blogger in Residence, recently wrote a piece about her role as a…

How do I do what Andalyn's pediatrician counseled me when he said, "I know it's…

As the parent of a child who is ill, someone has undoubtedly said to you,…

There was a time in Andalyn’s life that I would have done absolutely anything for…

I am really tired. Mentally. Physically. Energetically. I am tired of politics and of the…

Having a child with a rare progressive disease is like a lifelong train ride... Every…