7/1/2025 Transplant for Severe Aplastic AnemiaOn July 20th, 2019 my husband Chris and I were married. Our daughter, Alayna danced…
Dear Mother or Father Who Isn’t Brokering Your Own Treatment for Your ChildDear Mother or Father Who Isn’t Brokering Your Own Treatment for Your Child, I wanted…
Milestones and Inchstones: The first four months with a healthy childThere are moments when time collapses on itself. Perhaps that is what trauma does –it…
The Endurance We Didn't ChooseBefore Lucas was born, before he was diagnosed with two rare diseases, and before he…
Finding Hope Again in the Shadow of RiskKatie Krawzak, fellow Blogger in Residence, recently wrote a piece about her role as a…
We Hope: A Letter to Parents from Your Palliative Care ProviderAs the parent of a child who is ill, someone has undoubtedly said to you,…
