Post tag: Hope

Courageous Parents Network Blog

Katie Krawzak, fellow Blogger in Residence, recently wrote a piece about her role as a…

How do I do what Andalyn's pediatrician counseled me when he said, "I know it's…

As the parent of a child who is ill, someone has undoubtedly said to you,…

There was a time in Andalyn’s life that I would have done absolutely anything for…

I am really tired. Mentally. Physically. Energetically. I am tired of politics and of…

Having a child with a rare progressive disease is like a lifelong train ride... Every…

When my daughter Cameron and nephew Hayden were diagnosed with infantile Tay-Sachs in 1999, there…

I’ve been thinking a lot about the notion of HOME. Or rather, many signs have…

Written December 2018 We are rounding the 5th anniversary of Ben’s passing. It is a…