6/24/2020 Featured Post Going there: Peeking at End of LifeEnvisioning a child’s death is essentially impossible. Wretched and mind-stopping, the prospect may feel like…
A Good Parent: What does this mean to you and how has it evolved? In the early days of Courageous Parents Network, I read as much rigorously designed and…
A Lifelong Train RideHaving a child with a rare progressive disease is like a lifelong train ride... Every…
What Do We Do About Elmo and the Orc Mask?Even before the coronavirus compelled a new work-from-home arrangement, my husband Brad and I had…
Opioids: A Provider’s PerspectiveOne of my core beliefs in palliative care is “It all starts with communication” even…
Our Nurses' NamesReciting names is a gesture of summoning. When we recite names, we bring awareness to…
Fulfillment in THIS Motherhood My son, Oliver, has Tay-Sachs disease; a rare genetic condition where a normal, healthy…
My View of the Power of WritingI never thought of myself as a writer, which I realize sounds strange to say…
Companioning – The Gift of PresenceJulianne Tullis MSW When we think on the idea of Presence, we consider Presence as…
