Skip to content
Courageous Parents Network Logo

Courageous Parents Network

About

About Courageous Parents Network
Staff and Board
Donors
Annual Report
Parent Champions
Speaking Engagements
Courageous Provider Award
Research and Publications

Initiatives

Navigating Medical Complexity
Coping with Loss
NeuroJourney
Contact Donate

Search

Search entire library or by microsite

Click here for NeuroJourney resources

Read the Blog

Adjusting the Nest

Adjusting the Nest

An honest look at medically complex parenting—navigating regression, constant tension, caregiving grief, and the search for acceptance amid rare disease challenges.
Good Lung Down

Good Lung Down

In respiratory care, the good lung goes down so the struggling one can expand. Caregivers of ill children often flip that—hiding grief; showing others the strong side.

384 resources found

Clear All

Filter by:

Theme

Perspective

Diagnosis

Sort By