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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Yielding: On Resilience, Reliance, and the Promise of the Net

We have been told that to be resilient is to stand apart. To weather the storm unmoved, to endure without breaking, to carry the weight without complaint. Fathe...

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Who’s Your Quarterback? When Growing Up Means Replacing the Team and the QB

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Who’s Your Quarterback? When Growing Up Means Replacing the Team and the QB

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A Place to Be

A Teen’s Experience with Pediatric Palliative Care

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A Teen’s Experience with Pediatric Palliative Care

Living with GSD 1B is a Chronic Crisis Existence

Things I Wish Providers Had Told Me: 7 Lessons Learned Raising my Differently-abled Son

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Things I Wish Providers Had Told Me: 7 Lessons Learned Raising my Differently-abled Son

Advocating for CJ Always (HLHS/Kabuki Syndrome)

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Advocating for CJ Always (HLHS/Kabuki Syndrome)

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Transplant for Severe Aplastic Anemia

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The Fleeting Nature of Good Days

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The Weight of the Family Outing

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Please Presume Competency

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Yielding: On Resilience, Reliance, and the Promise of the Net

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