Things I Wish Providers Had Told Me: 7 Lessons Learned Raising my Differently-abled SonMy son was born 14 weeks premature. The odds were not in his favor, yet…
Advocating for CJ Always (HLHS/Kabuki Syndrome)On the night my son is born, he is whisked away by ambulance to Children’s…
Transplant for Severe Aplastic AnemiaOn July 20th, 2019 my husband Chris and I were married. Our daughter, Alayna danced…
The Fleeting Nature of Good DaysMy daughter Bella was born 4 years ago with a very rare genetic disorder called…
The Weight of the Family OutingMy son found a broken dinosaur mood ring in the bottom of a drawer as…
Please Presume CompetencyWe don’t get to decide what children can or cannot achieve as adults. Our job…
Who’s Your Quarterback? When Growing Up Means Replacing the Team and the QBWhen Evren and I first heard someone ask us, “Who’s your quarterback?”, it took milliseconds…
The Ordinary Instant and the Shattering of TimeThe morning light, soft and diffused, bathed the nursery walls in gentle hues. My daughter,…
