End of Life and Bereavement
Considering your child's end of life may feel like an impossible thing to do, but when the disease or condition is very serious, many parents and other close caregivers choose to address this possibility as early as the initial diagnosis. The most important thing to know is that hope is always present and is always part of the care plan, and that hope can change shape as your child’s condition and/or prognosis shifts. Also, while there is no absolute and predictable path for how things are going to go, there is some practical information that can help you feel more empowered and in control as these difficult things unfold.
Grief is also unpredictable and changes shape over time. Each of us confronts loss in our own way; there is no right way. Learning from providers and families who have walked this path ahead of you can help you see that you too will find your way.