The origins of Courageous Parents Network lies in the cumulative experience of bereaved parent and pediatric palliative care advocate Blyth Taylor Lord. Following her daughter Cameron’s death in 2001 from Tay-Sachs, Blyth offered her perspective on the needs of families caring for children with life-limiting illness and how providers can best meet these needs, representing the parent perspective on panels and in workshops with pediatric residents and specialists. Then, drawing on this experience and more than 20 years as a television producer (ABC News, WGBH), she produced an award-winning film with the American Academy of Pediatrics to help train doctors in how to work with families from the time of diagnosis through to the end of life.
Blyth founded Courageous Parents Network in 2014 and has since worked full-time with leaders in pediatric palliative care—doctors, nurses and nurse practitioners, social workers, patient advocacy groups, palliative and hospice care providers—as well as with bereaved families, and families whose children are currently living with life-limiting illness. She serves on the board of National Tay-Sachs and Allied Diseases Association, where she helps oversee NTSAD’s family support services, and as co-chair of the Parent Working Group for the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine. In 2021, Blyth received the Presidential Citation for Palliative Care Advocacy from AAHPM.