Our Partners
American Academy of Pediatrics Section on Hospice and Palliative Medicine

The AAP Section on Hospice and Palliative Medicine strives to lead and empower palliative care specialists, pediatric cl ...
Child Neurology Foundation

CNF serves as a collaborative center of education, resources, and support for children with neurologic conditions and th ...
Cure Mito Foundation

Cure Mito Foundation is a nonprofit patient advocacy organization led by parents of affected children. Its mission is to ...
Hope for HIE

Hope for HIE is the premiere global patient advocacy and support nonprofit organization working to improve the quality o ...
National Tay-Sachs & Allied Diseases Association

NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, fo ...
Patient Worthy

Patient Worthy is the world’s largest, rare disease media platform, sharing news and information about around the globe. ...
Pediatric Palliative Care Coalition

Pediatric Palliative Care Coalition (PPCC) provides information, resources and support to families of children with life ...
The End of Life Nursing Education Consortium

The End of Life Nursing Education Consortium (ELNEC) is a national and international project to provide nurses and other ...