Our Partners
American Academy of Pediatrics Section on Hospice and Palliative Medicine
The AAP Section on Hospice and Palliative Medicine strives to lead and empower palliative care specialists, pediatric clinicians, and trainees to provide the highest possible quality of care to seriously ill infants, children, and their families through the advancement of pediatric palliative care advocacy, education, clinical quality, and research.
Child Neurology Foundation
CNF serves as a collaborative center of education, resources, and support for children with neurologic conditions and their families. CNF also helps facilitate connections with medical professionals who care for them.
Cure Mito Foundation
Cure Mito Foundation is a nonprofit patient advocacy organization led by parents of affected children. Its mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
Hope for HIE
Hope for HIE is the premiere global patient advocacy and support nonprofit organization working to improve the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy.
National Tay-Sachs & Allied Diseases Association
NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community.
Patient Worthy
Patient Worthy is the world’s largest, rare disease media platform, sharing news and information about around the globe.
Pediatric Palliative Care Coalition
Pediatric Palliative Care Coalition (PPCC) provides information, resources and support to families of children with life-limiting conditions and palliative care providers.
The End of Life Nursing Education Consortium
The End of Life Nursing Education Consortium (ELNEC) is a national and international project to provide nurses and other clinicians with education in palliative care to improve care for patients and families facing serious illness.