Our Partners
American Academy of Pediatrics Section on Hospice and Palliative Medicine
The AAP Section on Hospice and Palliative Medicine strives to lead and empower palliative care specialists, pediatric cl ...
Child Neurology Foundation
CNF serves as a collaborative center of education, resources, and support for children with neurologic conditions and th ...
Cure Mito Foundation
Cure Mito Foundation is a nonprofit patient advocacy organization led by parents of affected children. Its mission is to ...
Hope for HIE
Hope for HIE is the premiere global patient advocacy and support nonprofit organization working to improve the quality o ...
National Tay-Sachs & Allied Diseases Association
NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, fo ...
Patient Worthy
Patient Worthy is the world’s largest, rare disease media platform, sharing news and information about around the globe. ...
Pediatric Palliative Care Coalition
Pediatric Palliative Care Coalition (PPCC) provides information, resources and support to families of children with life ...
The End of Life Nursing Education Consortium
The End of Life Nursing Education Consortium (ELNEC) is a national and international project to provide nurses and other ...