CPN | Speaking Engagements

Speaking Engagements

Compelling and compassionate, the Courageous Parents Network core staff speak to the lived experience of patient families with a unique combination of authority and sensitivity. All bereaved parents and/or pediatric palliative care professionals, they are conversant in the language of serious, rare and fatal conditions—and how a devastating diagnosis, the illness journey, and bereavement affect the family and the caregiver-provider relationship.

The staff is prepared to present virtually through 2021, unless circumstances change and we able to meet with you in person. To engage a CPN speaker, contact us.

SAMPLE TOPICS

For Providers (Rounds, Conferences and Meetings)

  • Family Resiliency in the Face of Illness and Loss
  • The Value of Pediatric Palliative Care for Families of Seriously Ill Children
  • Communicating with Families of Seriously Ill Children
  • The Lived Family Experience in the Face of a Serious Pediatric Illness
  • Meaning Making and Transformation Following Child Loss
  • Supporting Shared Decision-Making with Families of Seriously Ill Children
  • Accompanying the Family of Seriously Ill Children
  • Living with Anticipatory Grief

For Industry (Conferences and Meetings)

  • Understanding the Lived Family Experience
  • Coping with the Diagnosis; Anticipatory Grief
  • Supporting the Social-Emotional Health and Wellbeing of Rare Families
  • Evaluating the Clinical Trial Option: Family Education and Shared Decision-Making
  • Guiding the Siblings
  • Bereavement 
  • The Intersection of Hope and Family Genetics

For Patient Families and Disease Groups (CPN and Sponsored Programs and Events)

Panels, presentations and virtual events (choice of platform) on topics relating to anticipatory grief, advance care planning, pediatric palliative care, and bereavement

SPEAKERS

Blyth Taylor Lord, Founder and Executive Director
Blyth founded Courageous Parents Network in 2014 and has since worked full-time with leaders in pediatric palliative care—doctors, nurses and nurse practitioners, social workers, patient advocacy groups, palliative and hospice care providers—as well as with bereaved families, and families whose children are currently living with life-limiting illness. She serves on the board of National Tay-Sachs and Allied Diseases Association, where she helps oversee NTSAD’s family support services, and as co-chair of the Parent Working Group for the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine.

Janet Duncan, MSN, CNP, Editor, Educational Content
Janet Duncan, a Certified Pediatric Nurse Practitioner, helped found the Pediatric Advanced Care Team (PACT) of Dana-Farber Cancer Institute and Boston Children’s Hospital. She worked as a bedside nurse and educator with families who had children diagnosed with cancer and, later in her palliative care role, with families of children with diverse diagnoses of a serious illness. She continues to feel passion and find meaning in supporting families and children through her work with CPN.

Kerri Padgett, Senior Producer, Educational Content
Kerri worked with children with complex medical needs for many years before becoming a parent to one herself. During her son’s short life, Kerri focused on quality of life for her son and became heavily involved in the many facets of the palliative care community. She has remained a part of this community through her work as a pediatric massage therapist, blogger and advocate for families of children with complex medical needs. Kerri believes strongly in the efficacy of whole family wellness and peer support surrounding end-of-life care for a child. Her personal experience gives her relevant perspective that she is always happy to share with others.

Jennifer Siedman, Family and Patient Disease Outreach Coordinator
The co-founder with her husband of Ben’s Dream-Sanfilippo Research Foundation, founded to honor their son Benjamin, Jennifer has worked with researchers, patient advocacy groups and foundations worldwide to fund and advance gene therapy now in clinical trials in the U.S., Spain and Australia. Her commitment to advocating for children with special needs has also driven her career as a development professional and consultant. Jennifer has been recognized with the Global Genes RARE Champion of Hope and the Boston Celtics Heroes Among Us awards for her contributions. She became part of the Courageous Parents Network family when she and her husband shared their story in a CPN video, and she served on the CPN Parent Advisory board before joining the staff.

 

 

 

 

 

Can we help you: