Event
Book Talk with Jessica Fein - Breath Taking: A Memoir of Family, Dreams, and Broken Genes
May 14, 2024 at 8:00 PM ET
Watch an archived recording of this event
This event was a thought-provoking discussion with Jessica Fein, author of Breath Taking: A Memoir of Family, Dreams and Broken Genes. This poignant memoir takes readers on a journey through the roller coaster of complex parenting, exploring themes of love, resilience, and the profound impact of a rare degenerative disease on one family’s existence.
This event explored:
- How we learn to live in the present when the future can’t be fixed
- The isolation that comes when we’re thrust into rare parenting and the power of finding our community
- How we can balance the duality of being a relentless advocate while also providing a calm and supportive presence for our children
- The impact on siblings and what the author would do differently today
- The meaning of ambiguous grief and how naming it allows us to integrate the powerful emotions we feel
- The realization that joy and sorrow can live together
This memoir is not just a narrative of personal tragedy but a testament to the strength of the human spirit in the face of life’s most challenging circumstances.
Order Breath Taking Here:
Our Panel
Jessica Fein
Jessica Fein is an author, advocate, speaker, and host of the podcast I Don't Know How You Do It. She’s a seasoned media contributor, having published more than 100 columns and essays in The Boston Globe, HuffPost, The Mighty, Psychology Today, Zibby Mag, Kveller, and is currently a CPN Blogger in Residence. Jessica is a working mother and a relentless warrior in the memory of her dynamic daughter, whom she lost to a rare disease in 2022. Jessica serves on the Board of Directors of MitoAction. She’s the mother of three, whom she and her husband adopted from Guatemala. They live in Framingham, Massachusetts with their quasi-service dog, who trained himself.
