CPN | Parent Perspectives: Insights into Medical Decision-Making
Download CPN on the App Store
Image of In The Room event flyer on Courageous Parents Network

Event

Parent Perspectives: Insights into Medical Decision-Making

June 25, 2025 at 12:00 PM ET

Register Now

Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child, weighing not only risks and benefits but also the goals of care for their child. Join a panel of experienced parents as they share valuable insights into their decision-making journeys. Discover the factors that influenced their choices, the challenges they faced, and the lessons they learned along the way. Hear how they worked with their child’s care team and ultimately made their decisions. Don’t miss this opportunity to learn from real-life experiences and gather practical advice to support your own decision-making process.

This session will be moderated by Gabrielle Conecker, who has more than 20 years of experience in advocating for and advancing public health.

This event will take place on Wednesday, June 25th at 12:00 pm ET (11:00 am CT, 10:00 am MT, 9:00 am PT).

Our Panel

Gabrielle Conecker, Executive Director and Co-founder of the International SCN8A Alliance and DEE-P Connections

Executive Director and Co-founder of the International SCN8A Alliance and DEE-P Connections, dedicated to advancing SCN8A research and improved outcomes across the rare epilepsies consecutively. Gabi has dedicated her career to advancing public health and transitioned to working in epilepsy when she had her son, Elliott, in 2012 who lives with a very severe form of SCN8A-DEE. Gabi earned her Master of Public Health (MPH) from Columbia University’s Mailman School of Public Health in 2007. Her professional acumen is further accredited with a PMD Pro program management certification, reflecting her capability to lead complex projects to success. Gabi channels her extensive experience and strategic thinking into action to promote progress and improved outcomes. Her focus is on driving impactful change, focusing research, galvanizing the medical community behind a unified plan of action, and relentlessly advocating for transformative care and treatments that bring improving quality of life to those with SCN8A and DEEs.