Caregivers accompanying a child with Severe Neurological Impairment (SNI) face many symptoms. NeuroJourney is an educational digital resource that presents many aspects of the SNI disease trajectory in a series of phases—the arc of a life—to help parents and other caregivers navigate the present and prepare for the future. Medical topics are discussed through the lens of changes in the central nervous system and how they affect other bodily systems. Social and emotional topics are also represented, along with commentary that brings in a holistic, palliative point of view.

In this event we dove into CPN’s newest resource – NeuroJourney! This event was designed for parents and caregivers to get to know more about this new educational resource for families and others caring for children with SNI. It included an overview demo as well as suggestions and ideas for using NeuroJourney with your clinicians.

This webinar was hosted by CPN’s Executive Director, Blyth Lord, whose own daughter lived with SNI, and CPN’s Director of Clinician Outreach and Engagement, Chrissy Salley.