How Palliative Care Helps
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Palliative Care: “Nothing is forced. They listen to what I have to say.”
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Palliative Care: “Nothing is forced. They listen to what I have to say.”

A pediatric neurologist on Palliative Care: “It's that human level work that we have to intentionally bring back into these conversations now that medicine has gotten so advanced.”

“I wish palliative care had arrived three weeks earlier… It was such a relief.”

Palliative Care in Oncology: Example 1: Pain Management

How palliative care looks in oncology: example 2, pain and nausea management

Palliative Care in Oncology: Speaking the child’s language; children understand

A palliative care MD: “We need to try to understand what the parent's motivation is; and not shy away from pain.”

A PICU NP on seeing the value of pediatric palliative care at work.

We needed palliative care for symptom management, but also because I really needed the support.

We needed palliative care for symptom management, but also because I really needed the support.

2021 Courageous Provider Award Video: What I learned on this Journey With You

Going from palliative care nurse to palliative mom: A new appreciation for grief and caregiver needs.

What is Pediatric Palliative Care, Really?

A Doctor: I saw that palliative care was a holistic way to think about care

Now I understand what palliative care is!

Palliative Care: I was able to unburden my worries to one person … and then the care conference allowed us to talk about everything.

The palliative Care team helped me preserve his quality of life.

Palliative care gave us a language to talk to the medical specialists.

Palliative care is the beginning of finding your way.

Palliative care helps reframe interventions like feeding tubes.

Palliative care fills a huge hole that comes from having a medically complex kid.

Parenting a medically complex child, and finding balance: Not every decision is critical.

It was like this little secret society.

We provide our expertise over the continuum of care and support the broader team.

Palliative Care Helps with Difficult Decisions

Finding Hope

We provide parents with hope and also the courage they need to take the journey.

Palliative Care Focuses on All the Living

I learned about palliative care and thought, that’s exactly what we need.

I wish somebody had told us about palliative care at the beginning.

Palliative care isn't just skills and filling in a checklist.

Decision-Making: We created a space where we examined what the Next Steps are.

Palliative Care made it possible for us to go home and live.

Palliative care helps parents pause and reflect.

Uncertainty in the face of serious illness in a child: Unpacking parents’ worries.

Parenting a Medically Complex Child: Palliative Care helped us plan his end-of-life at home

I always want parents to know they have a choice

Talking directly with parents: If we would just come out and say ...

Once we understood what it was, we got on board pretty quickly.

Parenting a Medically Complex Child: finding palliative care and how it helped

The palliative care team would ask us, “How do you feel about what you just heard?”

There’s no ONE conversation.

Offering parents information and giving them the space to reflect: Are we getting the right balance?

A mother who is a doctor reflecting on her discovery of palliative care as an option for her child.
