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Not sure where to start?
Explore CPN Core Concepts
Learn More
Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Partners
Speaking Engagements
Staff and Board
Mobile App
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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VIDEO LIBRARY
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Video Library
El Legado de Mi Hijo
Ritual
Duelo
Involucrando a los Hermanos
Fin de la Vida
Cómo ayudan los cuidados paliativos
Trasladándose para obtener la mejor atención
Identidad Como Padre
Traqueotomía
Cuando es un Tiempo Largo e Indefinido
Trabajando con el Equipo Médico
About CPN
Covid-19
The Beginning
Telling the child's story
The Road to Diagnosis
Responding to a New Diagnosis
Anticipatory Grief
A PreNatal/Fetal Diagnosis
NICU
How Palliative Care Helps
When a Parent Is Also a Clinician
When it’s a Long, Indefinite Timeline
Working with the Medical Team
Pain Management
What Matters Most to Your Family
Building Your Support Network
Understanding the Sibling Experience
Self Care
The Support of Other Parents
Professional Support
Your Circle Will Change
Unconscious Bias in Medicine
The Hospital
Heart Transplant
Financial Planning for the Fully Dependent Child
Shifting Expectations
Hope and Redefining Hope
Living with Uncertainty
Medical Home: Equipment, therapies, home care
Shifts in Baseline
Clinical Trial
Trial Basics
Trial Design
Qualifying for a Clinical Trial
Decision Making
After Participation
Emotions and Questions
Spinal Fusion Surgery
Exploring the Spinal Fusion Option
Multidisciplinary Approach
Preparing for Spinal Surgery
Post-Op
Life at Home Post SF Surgery
Declining Spinal Fusion
Fear of Regrets
Transitioning to End of Life: Home, Hospital, Hospice
Tracheostomy
Exploring the Idea of a Trach
Life at Home with a Trach
Saying No to Trach
Preparing for Tracheostomy Surgery
Shared Decision Making
Diagnosis
For Dads
Feeding Tube
Twins
Being a Sibling
Supporting Siblings
Talking about Diagnosis and Shifts in Baseline
Common Worries When Caring for Your Other Children
Talking about End of Life
Caring for Bereaved Siblings
From the Siblings (in their words)
The Marriage/Partnership
Writing as Healing
Yoga and Meditation
Grandparents / Extended Family
Genetic Counseling/Family Planning
Taking Care of Yourself
Considering Out-of-Home Placement
Guardianship / Transitioning to Adulthood
What is transition planning
Anticipating the Challenges
Understanding the Benefits of Adult Providers
Working with Your Care Team to Plan the Transition
Guardianship
Spirituality and Religion
Transplant
Issues of Control
Solo Parenting
Pregnancy After Child Loss
Child Life, how it helps
Preparing for End-of-Life
Anticipating End-of-Life: Worries and Emotions
Advance Care Planning (ACP): What and Who
Home/Hospice or Hospital
The Last Days/What Does End-of-Life Look like, Really?
Supporting the Siblings
What Comes After Death: Making Arrangements
Talking to Your Child about Their Wishes
Ritual
Bereavement
Early Bereavement
Finding Support in Bereavement
Grief Changes Over Time
The Family (including siblings) in Bereavement
Making Meaning/Legacy
Identity as a Bereaved Parent
Working with the Medical Team/ Goals of Care
Finding Support
Anticipating Being Bereaved
Making Memories
Making Difficult Decisions: How Palliative Care Helps
Making Arrangements
Talking to Your Child about Their Wishes
Looking at End-of-Life: When the Time Comes
Finding Your Child’s Legacy
Finding Meaning and Transformation
Your Identity as a Parent
Imagining the Future