Saying No to Trach
1 / 8
Decision-making about a trach for my son: palliative care appreciates that it can be a loving decision not to do everything.
Considering a trach: Wanting to do everything but it would have been too much for him.
Decision-Making: the gift of time to figure out what your child needs and what you can handle. (CPAP vs Trach)
Shared Decision-Making: Parent and Provider (Trach)
Decision-making re Trach: CPAP and doing everything possible not to get a trach for our daughter.
A mom on every night with the CPAP (not Trach): parents learn what they can tolerate.
I just couldn’t see our son with the tubes. It was just the way it was.