Exploring the Idea of a Trach
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CPN's In the Zoom Room: The Empowered Parent, Considering Tracheostomy
Tracheostomy: Structural Problems vs. Worsening Conditions
Tracheostomy: Families don’t want the diagnosis to determine their decisions. Need vs. Option
Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions
Two families, Two Paths
You have to make a decision and they’re both bad choices.
Exploring the idea of a Trach: “No one could give me a guarantee that it would extend the quality of her life.”
An MD provides overview of conditions when a trach would be considered
Trach: the outcome for the child, outcome for the parents. The two parents aren’t always on the same page.
Considering a trach: The parents’ threshold to -- see their child struggle breathing; to manage the trach.
Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries
Decision Making about the trach: Would talking to another parent be helpful?
I felt like I had a clock ticking down in my head.
You have to try to do what’s best for all your children.