Telling the child's story
“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years
The mother of a 14-year-old boy with medical complexity talks about the frustrations that sometimes arise when working with new clinicians who make assumptions about what her son needs before consulting her.
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“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years
Andy, a diagnosis at birth. “I immediately asked, “what is wrong with my son?”
Mom, Natalie, introduces the story of her now 23-year-old daughter Emma.
Julianna’s beginning: Charcot-Marie-Tooth disease
