Feeding Tube
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The feeding tube and palliative care
A Mom on deciding about a feeding tube for her child
I was devastated -- Suddenly my baby needs a feeding tube. No more breast-feeding
I had never met anyone whose child had a G-tube. I felt so isolated but I had to decide.
Palliative care helps reframe interventions like feeding tubes.
A feeding tube: Other parents gave us permission to make our own decision
Dialing back feeding at the end: looking for indications that the body isn’t tolerating feeds.
The doctor explained: not doing a feeding tube isn’t same as letting your child be hungry.
How we thought about a feeding tube or no feeding tube.
The Feeding Tube is a difficult decision. There is no right or wrong.
Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries
Decision-Making: We created a space where we examined what the Next Steps are.
I just couldn’t see our son with the tubes. It was just the way it was.
For each intervention, we asked, “Is this going to benefit his quality of life or our family’s quality of life?”
Re feeding tubes: It's about asking the right questions.
She needs the G-Tube so her body can rest.