Shared Decision Making
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Decision-making over 14 months: Our goal was always for her to feel loved and be out of the hospital, at home, as much as possible.
“I don’t use the terminology of quality of life. It labels something that is very difficult to label.” A perinatal doctor on listening to what is in the parents’ heart and hearing where they are headed.
A life-limiting fetal diagnosis: Empowering but not burdening the parents as decision-makers.
Shared Decision-Making: When parents ask the doctor for a recommendation.
