Professional Support
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We look for physicians who will be champions for our son, and who will offer us options.
Our son’s team of medical champions (Trisomy 18)
In the absence of enough nursing, being a nurse; and then finding ways to avoid burnout.
Clinical Psychology: children don't occur in a bubble, they have family, schools, and communities.
Clinical Psychologist: Name the worry and then come up with a plan.
The therapist helped us process and translate our actions and feelings.
Our primary care pediatrician was our biggest support.
The communication piece is very important.
Talking to a Third Party, “Am I crazy?”
We go see someone. It’s not marriage therapy. It’s life therapy
Can we help you:
Related
From our Blog:
- We All Know The Nurses Who Make A Difference!
- How Can We Prioritize Palliative Conversations?
- On top of it all, the Marriage!
- Our Nurses' Names
- A Physical Therapist’s Perspective on Shifting Baseline
- “I thought you’d never ask.” The Conversation(s): Why it matters, how it helps, who initiates It
- A Thank You to My Son's Palliative Care Volunteer
- The Value of Massage Therapy for Your Child (and You!)
- Is Your Pediatrician On-Board?