What Matters Most to Your Family
Parenting a Medically Complex Child: Shifting my expectations for his life
In this clip from Courageous Parents Network’s virtual interview with Brenda Murray, Brenda talks about going from trying to do EVERYTHING to help Sam develop his potential — the exhausting pressure that parents feel — to recognizing that all that effort wasn’t working. There was a shift from cure to comfort.
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Parenting a Medically Complex Child: Shifting my expectations for his life
From a Nurse: How I first get to know a family and their goals
We were actively protecting her from things that wouldn’t be right for her.
Tay-Sachs: We learned to avoid the hospital if possible
