Working with the Medical Team
My Present-Self message to my Past-Self: “You are doing a good job. You can take a rest.”
Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and spent most of his in the ICU. The experience was traumatic. Here, Sandy explores what messages she would give to her past self if she had the chance.
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My Present-Self message to my Past-Self: “You are doing a good job. You can take a rest.”
In the Zoom Room Recording: What does a good day look like?
Uncertainty: The doctor can’t have all the answers; building a shared partnership.
Cardiomyopathy: A mom on building a trusting relationship with her son’s heart failure doctor
