Working with the Medical Team
My Present-Self message to my Past-Self: “You are doing a good job. You can take a rest.”
Sandy, mother of Jack and Ben. Jack was diagnosed with the rare blood disease Kohlmeier-Degos and died 15 years ago at the age of 5 – only 9 months after his diagnosis, most of which was spent in the ICU. The experience was traumatic.
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My Present-Self message to my Past-Self: “You are doing a good job. You can take a rest.”
In the Zoom Room Recording: What does a good day look like?
Uncertainty: The doctor can’t have all the answers; building a shared partnership.
Cardiomyopathy: A mom on building a trusting relationship with her son’s heart failure doctor
