Working with the Medical Team
The Parent-Palliative Clinician Partnership: Knowing the Child; Interpreting for the Child
Palliative care doctor Erin Flanagan and mother Amy talk about the parent-clinician partnership and how they communicated with each other on behalf of the child and decision-making. Amy’s daughter Lauren was diagnosed with rhabdomyosarcoma at age 7 and died at age 10. “Parents are our allies. … how and when we engage the child is dependent on how we interact with the parents and their insights … We stand shoulder to shoulder with parents.”
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The Parent-Palliative Clinician Partnership: Knowing the Child; Interpreting for the Child
Osteosarcoma in an adolescent and ‘Total Pain’: There were all these compounding issues
“We were trying to prepare her for becoming her own advocate. You need to be forthright.”
A dad to fellow parents: “Be present, have a voice, trust but validate.”
