Preparing for Difficult Decisions
A Continuing Conversation
Over the course of your child’s illness progression, you will be prompted to consider some very difficult questions regarding your goals of care for your child.
Optimally, your child’s medical team will engage you in an ongoing conversation and lead you through these questions over time. Sometimes, however, you will need to make relatively quick decisions, especially if your child’s condition worsens or medical crises occur. Through an open channel of continuing conversation, you can work together to identify what your hopes and plans are for your child’s care—and you can re-visit your answers over time. Your direction
will then help the team deliver the care experience you envision for your child.