7/1/2025 Transplant for Severe Aplastic AnemiaOn July 20th, 2019 my husband Chris and I were married. Our daughter, Alayna danced…
How Food Brought Joy to My Daughter Even When She Could No Longer EatThe first time I fed my daughter was the day I met her in Guatemala…
Caregiver's ManifestoThe idea for Caregiver's Manifesto started with wanting to capture a number of the most…
What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?Summary of survey results published in the Journal of Pain and Symptom Management Jackelyn Y.…
Being a grandparent during the tough times I’m Carla Steckman’s mom and Talia Steckman’s grandmother. In July, 2017, Talia died at 23…
It’s What They Didn’t Do that MatteredGifts for no reason, indulgent sweet treats, endless patience for games, relaxed bedtime rules, and…
A Sister's Devotion Radiates Through the Story She TellsMy video chat with Barry’s sister, Lexi, is the most profound a conversation I have…
