Anticipatory Grief

In the Room: Processing Anticipatory Grief and Reframing Hopes and Expectations
A recording of CPN’s Live Virtual event, featuring three parents of children living with rare conditions and medical complexity — Laura Will, Bo Bigelow, Michele Callahan-Williams — and facilitated by Rachel Rusch LCSW, MSW, MA.
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We’re talking about the losses along the way

I was drowning in grief but trying to avoid it.

We all had imaginations about what it would mean to be an aunt and uncle; when we learned her diagnosis, it was a clarification of priority.

A social worker - It is important to name the emotions as grief.

Writing as healing, during her life and in bereavement: “It forced us to be with our Grief … And now it’s a portal to her.”

In the Room: Processing Anticipatory Grief and Reframing Hopes and Expectations

The early months post-diagnosis: grief, therapy, identity

It’s important to remind ourselves we’ve come a long way; we’ve gotten stronger.

Going from palliative care nurse to palliative mom: A new appreciation for grief and caregiver needs.

Archived In the Zoom Room: Grief as a Superpower - A conversation with mom and author Maria Kefalas

Delivering the diagnosis to her mother: “I wanted to control the blast because I was the epicenter.”

Mom to Grandma “I remember us talking about how you were stronger than I was giving you credit for.”

A mom on how having two healthy older children helped her get through.

Beginning parenthood in the NICU: There wasn’t enough support for us.

Some people want to look, some people don't

Parenting a Medically Complex Child: Grieving Before & After (bereavement)

A conversation about Anticipatory Grief

A mom: “No matter how blindsided you feel, you will get through it. You are strong enough.”

With the diagnosis comes the need to DO SOMETHING! (CLN2 / Batten)

Anticipatory Grief Part 2: A conversation between 2 moms

Parenting a Medically Complex Child: Finding support from bereaved parents.

I wanted Stuart to stand on the cliff with me and he had a different strategy.

Choosing Resiliency in the Face of Adversity: Blyth Lord, Sheryl Sandberg and Becky Benson

Your day-to-day life can be a happy place even though your child is going to die.
