Anticipatory Grief
Beginning parenthood in the NICU: There wasn’t enough support for us.
A mom of a son with cardiomyopathy describes how during the first few months of her son’s life in the NICU, she and her husband were given little direct guidance. “I think our son was cared for very well and I think a lot of the uncertainty we were feeling was because there was a lot of unknowns. Looking back now, there is still a bit of anger there that there wasn’t more support for us as new parents. This is your child, this your new normal, this is your life. There wasn’t many opportunities to grieve the loss of what we thought our life as parents would be.”
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We’re talking about the losses along the way
I was drowning in grief but trying to avoid it.
We all had imaginations about what it would mean to be an aunt and uncle; when we learned her diagnosis, it was a clarification of priority.
A social worker - It is important to name the emotions as grief.
Writing as healing, during her life and in bereavement: “It forced us to be with our Grief … And now it’s a portal to her.”
In the Room: Processing Anticipatory Grief and Reframing Hopes and Expectations
The early months post-diagnosis: grief, therapy, identity
It’s important to remind ourselves we’ve come a long way; we’ve gotten stronger.
Going from palliative care nurse to palliative mom: A new appreciation for grief and caregiver needs.
Archived In the Zoom Room: Grief as a Superpower - A conversation with mom and author Maria Kefalas
Delivering the diagnosis to her mother: “I wanted to control the blast because I was the epicenter.”
Mom to Grandma “I remember us talking about how you were stronger than I was giving you credit for.”
A mom on how having two healthy older children helped her get through.
Beginning parenthood in the NICU: There wasn’t enough support for us.
Some people want to look, some people don't
Parenting a Medically Complex Child: Grieving Before & After (bereavement)
A conversation about Anticipatory Grief
A mom: “No matter how blindsided you feel, you will get through it. You are strong enough.”
With the diagnosis comes the need to DO SOMETHING! (CLN2 / Batten)
Anticipatory Grief Part 2: A conversation between 2 moms
Parenting a Medically Complex Child: Finding support from bereaved parents.
I wanted Stuart to stand on the cliff with me and he had a different strategy.
Choosing Resiliency in the Face of Adversity: Blyth Lord, Sheryl Sandberg and Becky Benson
Your day-to-day life can be a happy place even though your child is going to die.
I was scared of losing him. I was scared of him not have a quality of life.
Can we help you:
Related
From our Blog:
- Two Hands
- Top 8 Things to Understand About Anticipatory Grief
- The Lost Shoe
- December 28th
- The Strength in Staying
- Getting beyond “Why me?”
- Super-powered Grief
- Creating a Kinship with Grief: Meet One of CPN's New Bloggers in Residence
- The Boy Next Door Outside My Window
- Anticipatory Grief: The time I had to prepare for her death provided an invaluable cushion to catch my fall .
- Giving Language to An Unarticulated Need
- Section on Hospice and Palliative Medicine - July 2017
- Mother's Day Present to Myself
- To worry, or not to worry, that is no longer the question.
- Back-to-School = Another Milestone Missed
- The Better the Before, the Better the After