CPN | Blyth and Charlie, Tim and Alison

Blyth and Charlie, Tim and Alison

Blyth and Charlie are parents of Cameron who died at age 2 from Tay-Sachs disease, and sisters Taylor and Eliza. Tim and Alison are parents of Hayden who died at age 2 from Tay-Sachs disease, and sisters Annie and Mary. Tim and Charlie are identical twins. Blyth and Alison were roommates and best friends in college. Hayden was one year older than Cameron. They were diagnosed within one month of each other. Hayden died 5 months before Cameron.

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We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below:

https://app.keysurvey.com/f/41646400/6a39/