Blyth and Charlie, Tim and Alison
Blyth and Charlie are parents of Cameron who died at age 2 from Tay-Sachs disease, and sisters Taylor and Eliza. Tim and Alison are parents of Hayden who died at age 2 from Tay-Sachs disease, and sisters Annie and Mary. Tim and Charlie are identical twins. Blyth and Alison were roommates and best friends in college. Hayden was one year older than Cameron. They were diagnosed within one month of each other. Hayden died 5 months before Cameron.
Twin brothers, two children with Tay-Sachs: Considering care decisions together.
Creating a safe place to explore decisions together. No judgement.
Charlie and Tim Lord, twins, and fathers of Cameron and Hayden respectively, talk about how they and their wives talked often together about their care goals and values for their children and gave each other space to make their own decisions. It was so comforting to be able to talk with each other free of judgement.