Genetic Counseling/Family Planning
IVF: Because the diagnosis is so rare we had to fight for insurance coverage.
The parents of a son who died from an extremely rare genetic disease discuss having a second child using IVF. They talk about the process of being approved through insurance and the testing they had done on the embryos to ensure that their next child wouldn’t have the same mutation.
1 / 17
IVF: Because the diagnosis is so rare we had to fight for insurance coverage.
Sharing the news of a genetic diagnosis and what it might mean for others in the family.
It’s terrifying thinking about having another child: We know there are sharks in the water.
If we have another child, I think I may have a lot of repeated trauma of dates and times
