Genetic Counseling/Family Planning
Sharing the news of a genetic diagnosis and what it might mean for others in the family.
The parents of a son with an extremely rare genetic mutation talk about how they discussed his condition with their families and how different family members responded to learning of his diagnosis.
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Sharing the news of a genetic diagnosis and what it might mean for others in the family.
IVF: Because the diagnosis is so rare we had to fight for insurance coverage.
It’s terrifying thinking about having another child: We know there are sharks in the water.
If we have another child, I think I may have a lot of repeated trauma of dates and times
