Genetic Counseling/Family Planning
Parenting a medically complex child, and deciding to have another child.
“It took us five years before we decided to have another child. I still say it was the most courageous decision I’ve ever made.” June MSW, LICSW, ACHP-SW, mother of Katie (28) — who is medically complex and likely has Rett Syndrome — and Alissa (23) — speaks about how consuming Katie’s early care was and how it took a lot of courage to have another child in the absence of knowing whether Katie’s condition was genetic. “The only way I got through the pregnancy was by not entertaining thoughts of ‘What if.'”
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Parenting a medically complex child, and deciding to have another child.
Discovering I was pregnant and being petrified to find out if the fetus is also affected with MPS.
Genetic Counseling and Pediatric Rare Disease: Advice doesn't exist; being present with the family.
Our first child's fatal diagnosis, with a new pregnancy at same time.
Should we have another child? How a counselor can help.
Pre-Natal Testing: Do you really want to know?
Pediatric Disease: My Genes, My Guilt.
Genetics: Considering the 'odds' of having an affected child.
More Children? It was important to talk to a third party about what we were thinking.
Helping families adjust to the genetic diagnosis.
You don't have to go it alone.
