Decision Making
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Faith and prayer helped with the cascade of decisions: trach, bronchoscopy, open heart surgery?
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All of my decisions are about getting him to the clinical trial.
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Clinical Trials: Whatever decision you make, it is going to be right for you.
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Clinical Trials: Weighing the Risks and Benefits
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Clinical Trials: As she aged my expectations about what treatment would mean adjusted.
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Clinical Trials: Which child? The decision was made for me.
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Clinical Trials: Is this really the right thing for my child?
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Clinical Trials: What diseases can actually say there is a cure?
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Clinical Trials: A mom on assessing risk when her child has a treatable disease
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Clinical Trials: Deciding if this is the right trial – Are you looking for curative or something that mitigates? What if there is a placebo?
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Clinical Trials: A mom on weighing risk, understanding endpoints and managing expectations
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Trial Participation, balancing risk and reward, hope and expectation, commitment and community
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The Personal aspects of a clinical trial, including relocation and the impact on other children
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Should I participate in a clinical trial?
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Clinical Trials: Timing is everything. Participate early or wait for Phase 3?
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Clinical trials: Weighing the risks; A Leap of Faith (CLN2 / Batten)
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Clinical Trials: You adjust your life and just do it. (CLN2 / Batten)
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Clinical Trials: Relocation and impact on the sibling (Batten/CLN2)
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From our Blog:
- Understanding Shared Decision-Making
- Ian Decides: A Mother Shares How Her Son Participated in Decisions About His Care
- Collaborative Goal-Setting
- The Only Certainty was More Uncertainty
- The Cure We Don't Want
- Spinal Fusion For Your Child?
- What anguish looks like: when parents realize they aren't in control. But neither is anyone else.
- Connecting the Dots
- This Palliative Care Doctor Helps Empower This Family
- Mother's Day Present to Myself
- Pediatric Ethics Committees: An Under-Used Parent Resource
- Agency and Dandelions
- The Trials of Clinical Trials - Part 2
- A Terminal Diagnosis and Risk Aversion
- The Cure We Don't Want
- A Letter to the Medical Residents at My Son's Hospital