Qualifying for a Clinical Trial
Clinical Trials: We really felt like we had the golden ticket. (CLN2/Batten)
Parents of two sons, one of whom has CLN2 (Batten disease), talk about some of the emotions they felt knowing that their son was in the trial while other children they had come to know and care for were not. “We felt guilty, because why Matty and not someone else? We understand it rationally but our hearts think something else.” They understand the FDA process, the business and costs of the research and industry.