Home/Hospice or Hospital
Choosing the support of the hospital at End of Life
The mother of a son with Neonatal Marfan Syndrome discusses how she and her husband decided that they wanted their son to have access to all the hospital machines at the end of his life and how they made it comfortable for their family. She also speaks to the confusion that came with a DNR and the process of explaining to each of their care teams what exactly it meant for their son.
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Choosing the support of the hospital at End of Life
Adding Hospice to the Care Team
From a fear of a home death to feeling it was the right thing. And what to do with the room after?
Leaving the hospital after he died: It was unbearable.
