Professional Support
![We look for physicians who will be champions for our son, and who will offer us options.](https://i.ytimg.com/vi/CmAFIBiQKw4/sddefault.jpg)
We look for physicians who will be champions for our son, and who will offer us options.
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![](https://i.ytimg.com/vi/CmAFIBiQKw4/hqdefault.jpg)
We look for physicians who will be champions for our son, and who will offer us options.
![](https://i.ytimg.com/vi/O5VD2pEAX18/hqdefault.jpg)
Our son’s team of medical champions (Trisomy 18)
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In the absence of enough nursing, being a nurse; and then finding ways to avoid burnout.
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Clinical Psychology: children don't occur in a bubble, they have family, schools, and communities.
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Clinical Psychologist: Name the worry and then come up with a plan.
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The therapist helped us process and translate our actions and feelings.
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Our primary care pediatrician was our biggest support.
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The communication piece is very important.
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Talking to a Third Party, “Am I crazy?”
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We go see someone. It’s not marriage therapy. It’s life therapy
Can we help you:
Related
From our Blog:
- We All Know The Nurses Who Make A Difference!
- How Can We Prioritize Palliative Conversations?
- On top of it all, the Marriage!
- Our Nurses' Names
- A Physical Therapist’s Perspective on Shifting Baseline
- “I thought you’d never ask.” The Conversation(s): Why it matters, how it helps, who initiates It
- A Thank You to My Son's Palliative Care Volunteer
- The Value of Massage Therapy for Your Child (and You!)
- Is Your Pediatrician On-Board?