Jennifer and Stuart
Palliative care gave us a language to talk to the medical specialists.
Parents of a son with SanFilippo Syndrome and their palliative care doctor discuss how palliative care helped them translate our philosophy of care into a conversation with Ben’s providers. Palliative care also gave them a space to re-evaluate their decisions over time without feeling badly. Doctor: We are interpreters who help translate between the specialists and the family.