CPN | Jennifer and Stuart

Jennifer and Stuart

Jennifer and Stuart Siedman, parents of Ben, who had Sanfilippo Syndrome and died at age 17, and siblings Noah and Isabelle.

1 / 24

Can we help you:

Your feedback matters!

We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below:

https://app.keysurvey.com/f/41646400/6a39/