A Good Parent: What does this mean to you and how has it evolved?

Parents want to be the best parents they can be for their child. While this is true for all parents, it feels especially important and true for parents caring for children living with serious illness and medical complexity. Parenting these children involves advocating for them, making decisions about medical interventions (with or for them, depending on the child’s cognitive abilities and developmental age), providing for quality of life in all ways, and so much more.  The stakes can feel especially high. And for bereaved parents, how they feel about how they parented can have an impact on their grief. 

The notion of being a good parent for children living with illness is a field of research that was initiated by Pamela Hinds, Phd, NP. CPN is excited to now collaborate with Dr. Hinds and colleagues Dr. Meaghann Weaver and Dr. Lori Wiener to further this work because we believe that the more that is known about what matters most to parents, the better able medical providers will be to support families.  

We also believe that the process of exploring this topic will feel good because you will be reflecting on your values and strengths, what matters to you and how you are acting on that with your child. 

What does being a good parent mean to you?

• Does it mean loving?
• Does it mean listening actively for what my child is or is not expressing?
• Does it mean laughing together even on the hard days?
• Does it mean learning more about my child?
• Does it mean helping others learn more about my child as more than just her diagnosis?
• Does it mean making more lasagna because my child loves Italian food?
• Does it mean fatigue and frustration to advocate for her unique health needs?

Join CPN for this LIVE conversation with Drs. Hinds, Weaver and Wiener, who will present on their research and eagerly engage your observations, questions, and experiences. 

Parents are the true experts and this is an opportunity to explore, express, listen and be heard with fellow parents.

Featuring Guest Experts

Pamela Hinds, RN, Ph.D., FAAN

The William and Joanne Conway Chair in Nursing Research Executive Director, Nursing Science, Professional Practice and Quality Outcomes Pediatrics Professor, George Washington University

 

 

 

Meaghann Weaver, MD

Division Chief, Pediatric Palliative Care Omaha Children’s Hospital

 

 

 

Lori Wiener, PhD
Co-Director, Behavioral Health Core Director, Psychosocial Support and Research Program
Center for Cancer Research, National Cancer Institute, National Institutes of Health

 

Parents want to be the best parents they can be for their child. While this is true for all parents, it feels especially important and true for parents caring for children living with serious illness and medical complexity. Parenting these children involves advocating for them, making decisions about medical interventions (with or for them, depending on the child’s cognitive abilities and developmental age), providing for quality of life in all ways, and so much more.  The stakes can feel especially high. And for bereaved parents, how they feel about how they parented can have an impact on their grief. 

The notion of being a good parent for children living with illness is a field of research that was initiated by Pamela Hinds, Phd, NP. CPN is excited to now collaborate with Dr. Hinds and colleagues Dr. Meaghann Weaver and Dr. Lori Wiener to further this work because we believe that the more that is known about what matters most to parents, the better able medical providers will be to support families.  

We also believe that the process of exploring this topic will feel good because you will be reflecting on your values and strengths, what matters to you and how you are acting on that with your child. 

What does being a good parent mean to you?

• Does it mean loving?
• Does it mean listening actively for what my child is or is not expressing?
• Does it mean laughing together even on the hard days?
• Does it mean learning more about my child?
• Does it mean helping others learn more about my child as more than just her diagnosis?
• Does it mean making more lasagna because my child loves Italian food?
• Does it mean fatigue and frustration to advocate for her unique health needs

Join CPN for this LIVE conversation with Drs. Hinds, Weaver and Wiener, who will present on their research and eagerly engage your observations, questions, and experiences. 

Parents are the true experts and this is an opportunity to explore, express, listen and be heard with fellow parents. 

This Live Series has been made possible by the Ilene Beal Charitable Foundation.