When your child is seriously ill, you must navigate many complicated systems. This can include the hospital or healthcare setting(s) where your child receives care; health insurance and medical supply systems; your local education system; and other networks of public support, like Medicaid or disability waiver programs.

The purpose of this guide is to help you get started as you learn how to navigate these systems. While there is no direct or easy way through the maze of complex caregiving, there are some common practices that can ease your path.