Shifts in Baseline
![A mom on deciding this time NOT to treat. “When its disease progression, forward doesn’t look the same.”](https://i.ytimg.com/vi/pJXJN7yJks4/sddefault.jpg)
A mom on deciding this time NOT to treat. “When its disease progression, forward doesn’t look the same.”
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A mom on deciding this time NOT to treat. “When its disease progression, forward doesn’t look the same.”
![](https://i.ytimg.com/vi/MB6i1OCTOco/hqdefault.jpg)
We were so caught up in having a new baby, and having this new life at home with the two of them
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This is How We Live: This Thing Called Baseline
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A Mom reflects on when quality of life bumped into quantity: We asked, “What are we doing?”
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Intractable problems regulated by the CNS: Fix vs Modify. Asking to understand “I can’t make it better.”
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The Conversation and Advance Care Planning: “As Baseline moved, we’d make a new plan”
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Problems of the CNS: Is this a new acute problem OR a change in Baseline
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Problems of the CNS: What are family’s expectations: ‘Fix’ vs Accepting a change in baseline.
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Intractable problems and a new Baseline: When the hospital can’t change the outcome
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I need his life to be good NOW.
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We never held anything back from them.
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From our Blog:
- SEE Childhood Dementia
- You Need This
- Doctors' Words Well Chosen
- A Dose of Courage
- A Safe Haven and a Launching Pad
- A Parent's Narrative of Their Child is the Baseline
- Name It to Tame It
- A Physical Therapist’s Perspective on Shifting Baseline
- Birthdays and Baselines
- How Palliative Care Helps Us Balance Action and Acceptance
- Connecting the Dots