Shared Decision Making
The notion of REVERSIBILITY to inform decision-making; and asking “Has it gotten harder for this child to live in their body?”
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The notion of REVERSIBILITY to inform decision-making; and asking “Has it gotten harder for this child to live in their body?”
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
MD-Parent Alignment, Guided Recommendations and Trust
A mom on the decision to put her daughter in hospice: we knew we could revoke it at any time and go back to the hospital. … And then she said ‘No Hospital.’
