The Support of Other Parents

I trust parents more than professionals when it's the home life
A mom talks about how the medical figures are authority figures but there is an equal give and take between parents. Parents are the best source of support. “If you’re comfortable, you make the other people comfortable.”
1 / 19

Navigating peer support groups.

Connecting with the PMG in the early days post diagnosis: Take some, leave some

Finding support from an older couple – different diagnosis but commonalities-- that took us under their wing

Finding most of my support from other cardiac parents who already get it.

Helping parents like us connect with fellow parents helps us feel less isolated.

Going to the affected families conference: "I needed my mom nearby."

One day you are going to be that person for someone else.

Finding Support: "Other parents showed me that there was hope."

Twin brothers, two children with Tay-Sachs: Considering care decisions together.

Finding Support: My brother can help me get through this.

Watching videos helps put words to things.

A Mother's Testimonial: How Courageous Parents Network helped a family do the unimaginable.

Parents like us, we're all on this island of misfit toys

I trust parents more than professionals when it's the home life

When you start talking, they start sharing.

Try a group. There is something cathartic about grieving with other people.

Chaplain: I encourage parents to connect with other parents.

We put our heart out there and they shared it back with us.
