The Road to Diagnosis
Getting the Diagnosis: How do we deal with this? Can this even happen?
Sarah, Ph.D., MPH, LP is a pediatric psychologist, wife of John and mom to twin girls, Molly and Emma. Molly was diagnosed at the start of the Covid pandemic with the rare occurrence of TWO pediatric cancers -Acute Lymphoblastic Leukemia and Neuroblastoma.
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Getting the Diagnosis: How do we deal with this? Can this even happen?
Learning our son had a rare genetic disease: It was a whirlwind.
The diagnosis didn’t change anything. We were still just treating symptoms.
Microcephaly Capillary Malformation Syndrome: 13th diagnosis in the world
