The Road to Diagnosis
Getting the Diagnosis: How do we deal with this? Can this even happen?
Sarah, Ph.D., MPH, LP is a pediatric psychologist, wife of John and mom to twin girls, Molly and Emma. Molly was diagnosed at the start of the Covid pandemic with the rare occurrence of TWO pediatric cancers -Acute Lymphoblastic Leukemia and Neuroblastoma.
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Getting the Diagnosis: How do we deal with this? Can this even happen?
Learning our son had a rare genetic disease: It was a whirlwind.
The diagnosis didn’t change anything. We were still just treating symptoms.
Microcephaly Capillary Malformation Syndrome: 13th diagnosis in the world
Mom’s instinct is right: A diagnosis of Polymicrogyria
Your feedback matters!
We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?
As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.
If you haven’t already taken the survey, please do so by clicking the link below:
https://app.keysurvey.com/f/41646400/6a39/