Sarah M
Dr. Sarah McCarthy, Ph.D., MPH, LP - pediatric psychologist and mom to twin girls, Molly and Emma. Molly was diagnosed with the rare occurrence of 2 pediatric cancers - Acute Lymphoblastic Leukemia and Neuroblastoma.
When only one parent is in the hospital: It was hard relaying our daughter’s updates to my husband.
Mother and Pediatric Psychologist, Sarah talks about how complicated it was for her and her husband to communicate about their daughter’s treatment when only one of them was allowed to be in the hospital at a time. She recalls having to relay a lot of heavy and upsetting conversations to her husband while trying to process them for herself and the stress that put on both of them.
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When only one parent is in the hospital: It was hard relaying our daughter’s updates to my husband.
Twins: Trying to keep them connected while one was in the hospital.
Twins separated by cancer treatment: They had never been apart for more than a day.
The worry doesn't end “I will never be able to not worry about the cancer coming back."
Self Care: Find tiny little opportunities to do something for yourself.
Navigating peer support groups.
Her transplant doc said, "Let me do the worrying for you. I will tell you when you need to worry."
Getting the Diagnosis: How do we deal with this? Can this even happen?
Clinical Psychology: children don't occur in a bubble, they have family, schools, and communities.
Clinical Psychologist: Name the worry and then come up with a plan.
As parents we have the ability to hear information, process it, and push it away so we can function.
A mom to her child with cancer: We talked about being brave. Sometimes she would say "I'm not brave."
Risk of relapse makes the term “end of treatment” hard, but we still celebrate along the way.
A mom about her child with cancer: I don't talk about winning the battle, because there's no winning
A clinician turned parent: The good and the bad of knowing too much.
Caring for children at home: Access to respite care should be top priority.
Caring for a child at home: The preparation is fine, but the continued support is missing.