Oralea and Rod
Parents of William, who died at age 8 from GM-1, and siblings Kyla and John
I was drowning in grief but trying to avoid it.
A father talks about how the hardest part for him was acknowledging the grief. For the mother, it was the loss of her dreams for her son and the new day-to-day logistics.
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I was drowning in grief but trying to avoid it.
CPN's In the Zoom Room: What Siblings Want
A sister: What I want to share with other siblings.
Rare disease in children: Voices of the Siblings
