Janet and Brian
Janet and Brian, parents of a young boy who died from SMA, share their experience.
Two families, Two Paths
Selected clips from interviews with 2 families of children with SMA Type 1. One family elected to have a trach for their child, the other family elected not to have a trach for their child.
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Two families, Two Paths
SMA ran in the family, and then it hit us in the face.
I relied mostly on the early intervention people to help focus on the living.
She’s very closed off about it.
