Finding Support in Bereavement

Bereavement: Outside people are afraid of feeling bad. “The ideal response is to lean in and recognize the grief and anguish.”
Matt and Myra, parents of Havi and Kaia, discuss what it felt like after Havi passed when the world seemed to be moving on while they were experiencing intense grief. Matt explores the ideal situation in which people would understand that grief may change how it shows up, but doesn’t ever go away. Myra speaks to a hope there will be a more community based approach to understanding grief so that both sides are educated in the experience of the other
1 / 17

Bereavement: Outside people are afraid of feeling bad. “The ideal response is to lean in and recognize the grief and anguish.”

There is not adequate grief support for aunts and uncles.

There’s no bereavement group for aunts: Double-duty grieving. I'm grieving for me but I'm also grieving what my sister has lost.

A social worker - To process regret, it can be helpful for families to review the steps and loving conversations that led to decisions.

A social worker on helping bereaved families stay connected to the hospital.

A bereaved mom: It was important to me to stay in contact with some of Jack’s providers.

Worrying about past decisions, the past, does have an effect on your body. … Yoga just felt good to me.

To help process grief - I think any kind of physical movement is imperative.

To pediatric providers: “There is no way to make child death easier but there is a way to help parents feel more supported.”

Hospitals need to be more active in how they support bereaved parents. “We are a gold mine of energy and love if given a chance.”

Parenting a Medically Complex Child: Finding support from bereaved parents.

Twin brothers and fathers, Tay-Sachs, bereavement, and their children’s legacy

The church provided emotional support for us, though my relationship with God has been affected.

When you have God on your side, you see everything different.

Find at least one person you can reach out to.

We didn’t get any counseling or do a support group after.
