Imagining the Future

It’s OK to think about the future.

Pediatric psychologist and grief counselor Nancy Frumer Styron talks about how it is healthy and OK for parents to think about the future without their child and to want some of it to just be over. A mom tearfully shares that she is looking forward to spending more time alone with her other child and the unencumbered time.

It’s hard to imagine your life without your child.

Grief counselor Nancy Frumer Styron and parents talk frankly about how parents wrestle with all sorts of feelings related to imagining their life without their sick child: upsetting feelings of guilt, relief, fear and loss.

There will be a sense of relief.

A mom caring for her daughter who is approaching end-of-life shares some of her darker thoughts about her child's life and seeking a sense of relief when it's over. "My entire life revolves around her care... and there will be a sense of relief when I can live a more normal life."

There will be more. Don’t live your life dwelling.

Parents of a daughter with Trisomy 18 talk about their belief in having a future with their daughter and not dwelling on what might happen.

We didn’t let ourselves think about the After, before.

A mother and father talk about staying focused on the present and choosing not to imagine the future.

I don’t know what I’m going to do when I don’t have to worry.

A mother and father stress how different and difficult it will be when they don’t have to leave a date to check on Mallory. It is hurtful to imagine.

I don’t know what impact Jake’s death will have on us.

Parents of a medically complex child, now age 18, talk about how hard it is to imagine the future because their lives have been consumed for so long by Jake’s care.

It’s OK to think about the future.

It’s hard to imagine your life without your child.

There will be a sense of relief.

There will be more. Don’t live your life dwelling.

We didn’t let ourselves think about the After, before.

I don’t know what I’m going to do when I don’t have to worry.

I don’t know what impact Jake’s death will have on us.