After Participation
![Clinical Trials: Once treated the road ahead is unknown.](https://i.ytimg.com/vi/RJKxMMz9i5c/maxresdefault.jpg)
Clinical Trials: Once treated the road ahead is unknown.
In this video, a mom talks about how once her daughter was treated in a clinical trial the road ahead and her daughter’s disease progression was not known.
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Clinical Trials: Once treated the road ahead is unknown.
![](https://i.ytimg.com/vi/DrRbK99bp-o/hqdefault.jpg)
Clinical Trials: The pioneers and those who come after.
![](https://i.ytimg.com/vi/pj042H9NuH8/hqdefault.jpg)
Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.
![](https://i.ytimg.com/vi/DKNtiLaOsMA/hqdefault.jpg)
Clinical Trials: You give up some control when your child is a data point.
![](https://i.ytimg.com/vi/96QvSSJ_ypE/hqdefault.jpg)
Clinical Trials: Our son is on the cutting edge. He IS the data. (CLN2 / Batten)
![](https://i.ytimg.com/vi/UwkAbGIT8n0/hqdefault.jpg)
Clinical Trials: Not everything is fixed. Outcome isn’t a ‘cure-all.’ (CLN2 / Batten)
![](https://i.ytimg.com/vi/WxJ1iEbS5LQ/hqdefault.jpg)
Clinical Trials: Expectations – Holding on to Hope. (CLN2 / Batten)
![](https://i.ytimg.com/vi/7wm6ol2AOeI/hqdefault.jpg)
Enzyme replacement therapy, Stem Cell Transplant, and Living into the Unknown
![](https://i.ytimg.com/vi/RqhoNJ1MdOc/hqdefault.jpg)