Shaelyn Waller, BSN RN CHPPN
Community-Based Hospice and Palliative Pediatric Nurse
![From a Nurse: How I first get to know a family and their goals](https://i.ytimg.com/vi/M2mKHY71KVY/sddefault.jpg)
From a Nurse: How I first get to know a family and their goals
From a community-based hospice and palliative pediatric nurse: How I first get to know a family and their goals — “How they tell their story says so much.”
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From a Nurse: How I first get to know a family and their goals
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palliative care nurse vs block nursing, in the home
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A nurse: I metaphorically lie down on the floor with them.
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From a nurse: medical orders (MOLST) and how they empower decision-making (ACP)
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A nurse on end-of-life: “The timeline doesn’t always make sense. Sometimes it takes a long time.”
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The community-based nurse: A communication bridge between home and hospital
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A nurse: Is it appropriate to show emotion with the family?
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A nurse on learning self-care and boundaries
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A Nurse on Self Care: Preparing for the visit; Leaving the visit.
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Initiating hard conversations: “Sometimes we have to put it out there.”
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A nurse on helping families with decision-making and goals of care. (ACP)
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A nurse: “I have struggled with some decisions families have made.”
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Creating space to do Advance Care Planning: Name it to Tame It.
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A nurse answers: the thing parents worry most about ...
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A Nurse on end-of-life: “There isn’t any real way to prepare parents for it.”
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A nurse on parents asking, “Am I going to be able to survive this?”
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A nurse: how a death in the community can affect other parents of seriously ill children
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