Shaelyn Waller, BSN RN CHPPN
Community-Based Hospice and Palliative Pediatric Nurse
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From a Nurse: How I first get to know a family and their goals
palliative care nurse vs block nursing, in the home
A nurse: I metaphorically lie down on the floor with them.
From a nurse: medical orders (MOLST) and how they empower decision-making (ACP)
A nurse on end-of-life: “The timeline doesn’t always make sense. Sometimes it takes a long time.”
The community-based nurse: A communication bridge between home and hospital
A nurse: Is it appropriate to show emotion with the family?
A nurse on learning self-care and boundaries
A Nurse on Self Care: Preparing for the visit; Leaving the visit.
Initiating hard conversations: “Sometimes we have to put it out there.”
A nurse on helping families with decision-making and goals of care. (ACP)
A nurse: “I have struggled with some decisions families have made.”
Creating space to do Advance Care Planning: Name it to Tame It.
A nurse answers: the thing parents worry most about ...
A Nurse on end-of-life: “There isn’t any real way to prepare parents for it.”
A nurse on parents asking, “Am I going to be able to survive this?”
A nurse: how a death in the community can affect other parents of seriously ill children