Janet Duncan RN, MSN, CPNP
Founding Nurse Practitioner for the Pediatric Advanced Care Team (PACT) at Boston Children's Hospital

It was like this little secret society.
“We worked for two or three long years with the palliative care team to finally get good days with this boy who now has this smile and no pain. This was a work in progress that we did to get this boy a quality of life that we perfected. If he needs serious meds, he needs serious meds.” The mom of two sons with mitochondrial disease and their pediatric palliative care nurse talk about how they worked together to get her sons comfortable.
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It was like this little secret society.

Palliative Care Focuses on All the Living

Medical Orders/MOLST: Making the Decision Together

Medical Orders/MOLST: It was very emotional for me.

Always hoping we can make it a little bit better.

In our model we fall in love with your kids, and are a continuity factor.

Tracheostomy for my son?

I always want parents to know they have a choice

Decision-Making, Palliative Care: Please remind me what’s best for him.
